Friday, April 26, 2013

Spring Time

We rescheduled Mikan's physiatry appointment for next month.  For now we are busy with the preparations necessary for Mikan to begin a kindergarten transition in the fall.  He will still attend his ABA school in the afternoons during the transition.  We hope he is ready when the time comes.  I know we have a long road ahead of us making sure Mikan is supported and challenged appropriately.  And we aren't entirely sure of the best educational setting to foster this, but we have to start somewhere.  In a few weeks we will have an IEP meeting to discuss the results of all of his special education testing and what his team recommends for him next year.

Mikan's developmental pediatrician recommended that we have Mikan buy his lunch at school each day and then bring a can of Pediasure along.  I hadn't thought of this since I figured he would refuse it every day, but it is an interesting way to give him regular exposure to different food, and it would help him fit in more with the kindergarten crowd.  

We are all looking forward to the warmer weather, spending more time at the park or playing in the hose outside.  

Mikan and Molly the Bubble Guppy in their shades.

Anica helping Dad build a raised garden bed.

Friday, April 12, 2013

More Testing

Mikan's new planet AFOs

Well, Mikan has made some eating progress at his ABA school.  His therapists report that he will spontaneously ask to add nutella to toast or crackers.  However, this hasn't transferred to home yet.  He is still compartmentalizing his eating.  This is definitely a new texture for him, and we are trying to continue to offer it in a non-threatening manner.

Next week Mikan will continue to be tested for special education services at the kindergarten he will attend part-time in the fall.  We will hear the school psychologist's results of her autism testing.  Even though Mikan already has a classic autism diagnosis from a pediatric psychologist, he needs to be diagnosed again by a school psychologist in order for it to be written on his IEP and receive special education services.  As a part of the testing, John and I had to fill out a questionnaire about Mikan.  According the the test, Mikan doesn't score high enough to be diagnosed with autism.  But this isn't the only assessment that is used to determine eligibility.  While seeing Mikan's tremendous growth is inspiring, I can't help but be extremely frustrated with the assessment.  His autism hasn't disappeared (even if he now has some strategies to cope), and if this test is unable to determine that, then it is just another example of a standardized test failing to measure what it is set out to.  We are hoping he will be able to have autism as a diagnosis written into his IEP.

Some sibling love below...

Thursday, April 4, 2013

Happy Easter 2013

We were very blessed to be able to spend so much time with our family over Easter.  The kids participated in several Easter egg hunts and even behaved themselves at church.  It was a wonderful weekend.

Mikan's OT at his ABA school recommended an additional therapy called TheraSuit therapy.  The facility that offers it is a 45-minute drive from our house.  They use a special suit and intensive exercise program to help "eliminate pathological reflexes" and establish "new, correct, and functional patterns of movement."  We are looking into the commitment to this program.  He is already pretty scheduled, and we were considering adding an additional feeding therapy program in the fall (once he goes to part-time at his ABA school), so another therapy would make his plate quite full.

Other medical updates:

Mikan recently got new AFOs made from a more flexible plastic.  Of course, he chose planets as his design.  I'll post pictures soon.

Mikan's eye doctor said that his left eye is much weaker than his right and is considering having him wear an eye patch to help strengthen it.  If this happens, you can be sure there will be plenty of daily pirate jokes.