Wednesday, February 22, 2012

Elton John/Baby Jaguar Update



John calls Mikan and Anica Elton John whenever they wear these glasses. Then he starts singing "Goodbye Yellow Brick Road."

Lately Mikan has referred to himself as "Baby Jaguar" (from the TV show Diego). He calls me "Dora," John "Diego," and Anica "Boots." He just labeled one of his homecare nurses as "Swiper" today too. It's pretty funny. There's another great example of the imaginative play his therapists are so concerned about.

Mikan's gross motor progress continues to improve. He does a lot of static standing now and can turn and redirect movements, maneuver around obstacles, and get up from the middle of a room without grabbing onto anything (although it takes a lot of effort and grunting). He has adapted well to his hinged AFOs, although they are extremely difficult to fit into shoes.

Most of Mikan's nursing has been eliminated. We have barely enough hours to get him through the school year (We were letting him ride the bus home with a nurse since his developmental preschool is a 25-30 minute drive from our home). If he keeps a g-tube through the summer, there is a chance he may continue to receive a few hours, but ultimately, we just want the tube gone. He hasn't gained any weight yet since we've stopped using it, but we're holding out hope for a healthy spring with some healthy weight gain.

We are beginning our annual fundraising efforts for the March of Dimes. Please consider donating to our team. We are confident that Mikan's progress is due to the great research conducted by the March of Dimes. You can click "donate now" on our March of Dimes badge on the left-hand column of this page to make an online donation to Team Mikan Boy. Thanks for your support in helping make sure more babies are born healthy.

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