Wednesday, January 4, 2012

Another Physiatry Update


Mikan enjoyed Christmas this year. Some of his favorite presents include a United States puzzle and card set, a World Puzzle, and a Handy Manny toolkit. He is getting good at identifying all of the coutries. He regularly studies the puzzle, reads the names, and asks us to quiz him. It is pretty amazing. His favorite song right now is "The Alphabet of Nations" by They Might Be Giants. Below is a video of him singing along with it.



Earlier this week we traveled to Indy for another physiatry appointment. His doctor was impressed with his progress. She reminded us that he was only taking a few steps at a time when she last saw him in August. She says that his strength has improved, he just needs to develop proper balance. She wrote a script for a new set of AFOs with a tether strap that allows more ankle movement to help him develop a more normal gait. She guessed that he might be in this new brace for another year before downgrading to an SMO. I thought she wouldn't consider an SMO for several years, so this was welcome news.

As John and I discussed Mikan's condition in response to her questions, she mentioned several times "You guys know too much." The first time we met her, she assumed I was a nurse because of the questions I asked. We get this a lot. Mikan's medical history has armed us with a vocabulary that allows us to communicate with medical professionals efficiently. Is this good or sad? Depends on how one looks at it.

But he had a good check-up, and we spent some time at the Children's Museum downtown during our trip. The kids loved it! Mikan's highlights were seeing Jupiter at the planetarium, maps of the world at several locations, playing in the water at the erosion exhibits, and sliding down the big Yule Slide.


Mikan in his element.





Mikan pointed out that this piece of the sarcophagus puzzle looks like Louisiana. I agree.



1 comment:

anastasiaK said...

No such thing as "knowing too much"--good for you guys!! One of the best things I got to do in dealing with Kira's cleft palate was to return to the hospital and train the staff on how to handle a lot of newborn feeding issues. I hope things have changed for the better in the last 20 years, but parents will always be their children's best advocates.

Future Cartographers of America Club--MIKAN for President!