Wednesday, December 28, 2011

Tuesday, December 20, 2011

He Plays



Mikan trying to help Anica blow out her candle. John is trying to coach him. Mikan still doesn't know how to blow or spit.

Mikan is recovering from another illness that completely haulted his solid food intake. Eating therapy is such a stressful, tiresome, and nearly thankless task. We are thankful for his regular appetite for Pediasure, but I just don't see any real progress on the horizon.

Mikan loves the Little People zoo set Anica got from Nina and Poppi for her birthday. The night she got it, Mikan stayed up playing with all of the animals. He actually played with them appropriately and didn't point out to us how the lion actually looked like the number eight, the tree like Idaho, or the tree swing the letter 'u'. John and I just watched him playing, foregoing his bedtime in favor of appreciating this milestone his therapists have been encouraging for two years.


Any guesses what Mikan's drawing might be?





In his words, "Mikan with snot coming out of his nose."



Mikan cuddling with Sophia and watching Dora.



We wish everyone a Merry Christmas and a Happy New Year. May you have a blessed holiday season. Thanks to all who have been praying for us this year.

Sunday, December 11, 2011

First-Ever Toboggan Run

I saw Mikan drawing on his own, and when I noticed what he wrote, I was so proud that I had to take a picture. I was impressed, but maybe it was just a mom thing. Are three-year-olds supposed to be spelling this kind of stuff?




We spent the weekend at Pokagon State Park. Mikan LOVED tobogganing. John had to stop taking him down because he was tired of carrying Mikan back up the toboggan run. Below is a video of one of their runs. You can't really see their faces, but it gives you an idea of how fast they were going.



Mikan painting a Christmas tree in Pokagon's craft room.



Mikan' playing in our first real snow earlier this weekend.



Thankfully one of Mikan's nurses was able to shove back in the piece of Mikan's g-tube that had gotten dislodged earlier last week. It isn't entirely secure, but it is functinal. Because he is close to having it removed, the GI nurse said that as long as the piece stays in and the site looks good, we don't have to have the tube changed. We are pleased with this and are praying that it will last until spring.

Saturday, December 3, 2011

G-Tube Trouble

Mikan jamming to his state song.



This week the inevitable happened...Mikan's g-tube broke. After nearly two years of no problems, a part near the area where we insert the extension tubing broke off. We aren't using the g-tube right now, and we were hoping to get rid of it entirely in the spring, but this breakage prevents it from staying closed and leaves more area open for debris to enter the stomach. So, we are going to have to change it. Our options are to switch back to a Mic-key tube which, while easier to insert, caused him tremendous difficulty in the past, or replace it with the kind of tube he has in (a Mini-One non-balloon), which needs to be inserted by a doctor and is a pretty painful procedure. We had so much trouble with the Mic-key (infections, granulation tissue, the balloon breaking when we weren't aware of it) that I can't imagine switching back to it, even for only six-seven months. I feel terrible that Mikan has to go through the switch though when we were relatively close to getting it removed. He's pretty tough though.