Sunday, September 4, 2011

Developmental Pediatrician and Psychologist Update

Last week Mikan had an informal evaluation with a pediatric psychologist. She told us that Mikan has some behaviors that are "concerning." However, because of his age, the multiple possible variables contributing to his delays, and the great network of therapies he already has in place, she said it didn't make since to diagnose him with anything just yet. A diagnosis wouldn't provide any new therapies for him at his age, and perhaps a little more time would help eliminate some variables. The behaviors she was concerned with were:

1) His limited eye contact
2) His preoccupation with letters and numbers in a toy she gave him and his inability to reciprocate a conversation for more than a few exchanges without reverting back to talking about a letter or number.
3) The fact that he doesn't try to get our attention to show us things that often. He talks to himself more instead.

These are all behaviors we are already aware of; however, we can't help but recognize how much more severe each of these behaviors was 8-10 months ago. He has come a long way, and we are cetain he will continue to make progress.

In the interview, John asked the psychologist, "Couldn't his interest in letters be evidence he might become the greatest writer ever?" She humored him and admitted it was possible.

So the psychologist wants to wait until he finishes the school year, and then she will complete a formal comprehensive evaluation to see whether or not he falls somewhere on the spectrum. We are convinced that if he does fall on the spectrum, his placement will be mild.

Next week we get the results from his esophagus biopsies. We are also visiting an allergist.

Mikan's teacher said she would like to move him up into the inclusion classroom, the "highest" level for his age group. One of his therapists joked that a kindergarten classroom would really be more appropriate for him if it weren't for his delayed social skills.

Finally, his developmental pediatrician did not agree that Mikan should go without the g-tube. She doesn't mind if he is on a mostly liquid diet; however, she did say it isn't wise to remove it at a point when he appears to be in the middle of a major regression. She wants to see evidence of lasting oral feeding skills before she is comfortable removing it. This makes sense to us too.

His overall fluid intake lately has been down too, so we've needed to use the tube for water. I hope he's not planning a hunger strike until Notre Dame wins their first game.




1 comment:

Kathy said...

I think it is great that you are on top of your son's issues. And the fact that you have seen progress in the behaviors in the last few months is a great sign. Both my boys are not able to be diagnosed, there issues really don't fall into any one category. Our oldest really set off a ton a bells with his behavours and we and he worked really hard at elminating the behavours that would effect him socially. Today nobody belives that at one time he looked at all on the spectrum. He is dyslexic but is coping beautifully! Our little guy, who is 6 is comming into his own as well. Both boys got therapies very early on as well. I think it makes all the differnce. I'm sure you guys are doing this already with your son, but I did a variety of things to help the boys expand their play and conversational speech. One example would be when my little guy comes home from school, if he does not really reply I would (and still somtimes do) say how was your day, really really stinky, or really, really good. Was your teacher super mean to you or were they super nice. This would get his attention, make him laugh and expand our conversation. I also purposely give silly anwers, where is my purse, did I leave it in the fridge? the bathtub? Do you want an alligator for breakfast? no, oh, how about a monkey! This always got, and gets a response. Anyway, I think it is great all that you are doing. All the best!!