Wednesday, August 10, 2011


On Monday we visited Shriner's Hospital in Chicago. Mikan met with a physiatrist, physical therapist, and speech therapist. We were pleased that the physiatrist had the same opinion as the doctor he sees in Indy. Basically Mikan doesn't appear to have too much spasticity (a trait typical of most kids with cerebral palsy). His core and extremeties are also pretty strong. His main problem is coordinating his balance. This doctor said he wouldn't even diagnose his problem as spasticity but rather ataxia. Because of this less common form of cerebral palsy, he reccomended we come back in six months to see a neurologist who may be more familiar with the condition. But overall it was good news. He didn't think Mikan needed any Botox, medicine, or surgeries to help him walk. He just needs therapy and time.

Mikan's gagging still isn't controlled, so we are meeting with an allergist next month to have him tested. None of his therapists or doctors seem to know what is going on.

Mikan at his last horseback riding lesson of the summer.

We had the massive sycamore tree removed from our backyard. The tree company that removed it said that the trunk was completely hollow and that you could walk inside of it. We will miss the tree, but not the mess it made, nor the fear of being crushed during a storm.


Kara @ Just1Step said...

Wow that is a giant tree!! So glad that the reports on Mikan were good, but sorry about his gagging. :( The human body is such a weird thing and so inexplicable at times.

Jenna said...

My name is Jenna and I came across your site. Mikan is an amazing, courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I am happy to hear the reports were good. It is too bad about the gagging though. I was born with a rare life threatening disease, and I love it when people sign my guestbook.