Friday, February 11, 2011

A Diagnosis

I drove Jenna and the family to Indy on Thursday to see a pediatric physical medicine doctor (physiatrist).

The physiatrist did not hesitate to connect Mikan's walking issues with the scarring shown in an earlier brain MRI. And because the scarring took place before the age of two, it is called cerebral palsy. To be more specific, dipelgic (two limbs) cerebral palsy.

Because he was not walking yet, we pretty much saw this coming. Except for the fact he had had two MRI's and both were read to be negative for CP. The previous readers of the MRI must have thought the scarring was inconsequential. The specialist we saw on Thursday did not agree. The specialist also wants to change the bracing used on Mikan's legs (more aggressive with AFO's and braces designed to handle his level of muscular spasticity). Hopefully, these interventions hurry the progress.

The specialist did note how mild the CP, and spasticity were. He has pretty decent range of motion, weak lateral leg motion, and a tight calf muscle. Therapy, and perhaps a botox shot are the current remedy.

For those of you who knew me as a kid, it looks like I passed on my spasticness to my son. Do boys first learn to pee standing up?


DevonLeah said...

((hugs)) glad you are getting some answers...prayers things progress FAST for your precious boy.

Um, I say go for standing up!! ....and I have 4 potty trained boys,(that is including hubby) who are doing ok in that area. ;o)

Anonymous said...

I say try sitting for the potty training. I potty trained my son standing, but then had a hard time getting him to poop on the potty. With our grandson we went with the sitting to potty train, and it was not only easier to get him to do it, but no problem with the pooping on the potty. Just be sure when he sits to pee, that he is aiming down and not forward, as the pee will go under the lid and get his clothes wet!

Kara @ Just1Step said...

So sorry about the CP diagnosis, but so glad you are getting answers. Glad it's mild.

Hope you are enjoying life with two little ones.

God bless,