Friday, January 28, 2011

Vision Problems

Mikan giving his sister "knuckles."

Mikan and the OT

This week Mikan visited a vision therapist and optometrist that his OT reccommended. Mikan has difficulty with fine motor skills and doesn't like to make eye contact when people are close to his face. The doctor said that Mikan has a congenital nystagmus (shaky eyes) that will probably always affect his vision, never allowing him to ever see 20/20, even with a corrective lens. He also has difficulty moving his eyes from side to side deliberately without moving his entire head (Right now we are developing exercises where someone holds Mikan's head in place while someone else runs back and forth in front of him). The doctor wanted Mikan's glasses prescription to be cut in half, enabling him to see better in the 1-2 foot range in front of him, since that is where most of his world is right now. His current glasses correct his distance vision, but because they are so strong, they make his close-up vision blurry. We've always known this, but the opthamologist we've been seeing said that he would learn to look over his glasses at things close-up. Well, he doesn't do that.

The new doctor we saw said that Mikan's brain is under too much stress trying to focus on things close-up, and he is not allowing his eyes to learn how to work in a 1-2 foot radius. So we are going to try getting him a new pair of glasses. He will wear the new pair most of the time, but we'll keep the old ones for him to use if we want him to look at things at a distance. Mikan doesn't know what it is like to see clearly, so he just doesn't complain.

In the next few weeks, Mikan will be assessed for ST, PT, and OT for his preschool services as well as at an outside clinic (since he is graduating from First Steps home therapy program in March). His schedule is getting a whole lot more complicated, but we're happy to see his progress, especially with speech lately.

We are also making a couple trips to Indy this month (we finally got to schedule them.) We are hoping to get some answers about Mikan's walking and poor core strength.

We think Mikan will love preschool. He knows all of his numbers and letters and practices sounding out words and reading his books. His speech is starting to become more recognizable to people outside of the family, so he won't have to rely so much on sign language to communicate with his teachers.


jkhenson said...

Chris and Allison (our now 16 yr old) both have nystagmus. They both have prisms in their glasses to move the "null", where the shaking is less, point from the corner of their vision to the front and center. Allison did eye therapy when she was around the age of 11 and continues to go back to her book of exercises when she feels it is necessary. It was really helpful for her. It's such a rare thing, it was interesting to see that Mikan had it, too. :) Hope things continue to go well with all of you!

DevonLeah said...

hope you figure out the vision stuff. =0( You are geting so big, Mikan!!

Alicia said...

I hope you can get the vision issues figured out, that must suck. I am so glad to hear Mikan will be going to school, he'll have so much fun! And yes, I can understand what he is saying in that video from the earlier post. Great job, Mikan!