Sunday, December 5, 2010

He Can Read!

Mikan made a gingerbread house during Story Hour at the library. Well, he mostly just ate the cereal and chocolate and crackers while his nurse and I made it.

We are in the middle of a Lake Effect snow storm here and Mikan is taking advantage of the freshly padded sidewalks. For his inaugural sled ride he requested that Elmo ride along with him.

Mikan has been battling diarrhea on and off for the last three weeks. He is having his stool tested this week to see if he needs an antibiotic. Poor kid can't keep anything in his stomach. Thank God we have the g-tube and don't have to worry about dehydration.

Mikan has been obsessed with numbers and letters lately. He can sight read a lot of words now and he even tries to spell them with some of the play letters that we have. I'm amazed at the new things he does/says every day.

Tomorrow we see the orthotist to have his gait tested for new braces, hopefully ones that he can't overpower. He wants to walk. Unfortunately, we will probably be unable to get him in to see a developmental pediatrician or physiatrist at Riley for another couple months. I've been on the phone trying to schedule these appointments for the last two weeks. It's amazing how long it takes to see a schedule an appointment with a specialist much less wait to see him/her.


Biggest FAN (favorite aunt Nikole said...

I love to sit and do crafts like that when someone else has everything ready for you, I bet it was fun for you two also! He is amazing at reading. This video about made me cry. It really has been fun being able to keep up with him and his progress even though we live more than an hour away. Thinking about you guys today and for the next few days until this snow lets up. Praying it doesn't stop you if you need to get someplace in a Hurry:)

Keri said...

I should have written this a long time ago... We also had a little early blessing at 28 weeks who had cruddy lungs and spent 7 months in the NICU. When we were trying to figure out whether or not to go with a trach, my sister found your blog. I can't even begin to tell you how much it helped ease our fears. Your outlook is so positive and with just the right amount of humor to encourage us to get over our fears and do what is best for our little guy. In fact, we call Mikan our little guy's cyber buddy. See, I told you I should have written you sooner to say thank you over and over for opening up your lives and sharing it with people like us.
Have a wonderful holiday season!

{I couldn't find your email on the blog so I decided to just comment.}

Michelle and Sean said...

I love it!! I can't believe he is reading!! That is just so great! He is a little miracle baby for sure!

Maggie watched the video with me and totally loved it.