Tuesday, December 28, 2010

Christmas 2010

We enjoyed Christmas at home this year. Many relatives came to visit, relieving us of the inconvenience of traveling. Mikan still doesn't understand the excitement behind opening gifts, but he enjoys playing with the new toys once they appear.

Lately he is especially interested in letters and numbers. One of his therapists mentioned hyperlexia, a condition often associated with autism where a child exhibits a fixation with letters. They will often have above average reading ability or letter recognition, but poor comprehension skills. Mikan isn't severe enough to be labeled with this condition, but it is one on a long list of things we are watching out for and trying to manage as he develops. John thinks it just means he will be really smart and eventually become a world leader.

It has now been almost six weeks and we still haven't been able to schedule
Mikan's appointments with a developmental pediatrician and physiatrist. Don't even get me started. The schedules for these specialists are ridiculous. I'm hoping to take care of it by next week.

So far over break Mikan has enjoyed sledding or rolling down hills with his dad and cousins. He doesn't seem to mind the cold (definitely a Gensic trait).

Friday, December 17, 2010

Home Sweet Home

"You mean, she's coming home with us!?"

Well, Baby Anica is a whopper. Despite the soreness from the C-section, I'm still glad to have the pregnancy woes behind me. Mikan has been doing well with the adjustment to siblinghood. He mostly just ignores her, but at least he isn't unhappy or angry about her presence. He is trying to learn her name, which sounds more like "Ah Kah" right now. Our first night at home was pretty typical. I got about three hours of sleep. This whole caring for a newborn without a bunch of tubes, wires, equipment, and alarms thing is pretty odd, but we're adjusting. She is nursing and pooping well.

A big thanks goes out to my mom who stayed with Mikan and entertained him this week while helping us around the house and with the transition home. We appreciate all her help.

We are still waiting to hear from a physiatrist about when Mikan's walking can be evaluated. My mom said that this week one evening he "forgot" he couldn't walk and got excited going after a toy while he was standing. He took a few steps before falling. Maybe his confidence is beginning to grow. Maybe having another baby around will be motivation for him. Hopefully he'll want to walk before she walks!

Wednesday, December 15, 2010

Mikan has a Sister!

Anica Mary is doing well. Born Monday morning at 7:29 Eastern, 8 lb 3 oz. and 20.5 inches. Mikan is coming around to understand what is going on. Jenna and Anica and getting along normally.

Sunday, December 5, 2010

He Can Read!

Mikan made a gingerbread house during Story Hour at the library. Well, he mostly just ate the cereal and chocolate and crackers while his nurse and I made it.

We are in the middle of a Lake Effect snow storm here and Mikan is taking advantage of the freshly padded sidewalks. For his inaugural sled ride he requested that Elmo ride along with him.

Mikan has been battling diarrhea on and off for the last three weeks. He is having his stool tested this week to see if he needs an antibiotic. Poor kid can't keep anything in his stomach. Thank God we have the g-tube and don't have to worry about dehydration.

Mikan has been obsessed with numbers and letters lately. He can sight read a lot of words now and he even tries to spell them with some of the play letters that we have. I'm amazed at the new things he does/says every day.

Tomorrow we see the orthotist to have his gait tested for new braces, hopefully ones that he can't overpower. He wants to walk. Unfortunately, we will probably be unable to get him in to see a developmental pediatrician or physiatrist at Riley for another couple months. I've been on the phone trying to schedule these appointments for the last two weeks. It's amazing how long it takes to see a schedule an appointment with a specialist much less wait to see him/her.