Wednesday, October 27, 2010

A Few Words



After spending the last week on bed rest, I've finally been granted a reprieve. I am just trying to be extra careful (I've stopped working and taking longer walks), and not carry Mikan around so much. I never thought I'd be so excited to fold laundry or put away my cereal bowl.

Mikan finally received his new AFOs that actually fit him. He has been wearing them during naps with some success. We are going to try them at night soon. He hasn't been complaining too much about them, but they prevent him from tucking his legs underneath him when he sleeps on his belly, so I'm not sure if this will affect his sleep or not.

Mikan is finally starting to attempt some words. It's fun to see him vocalize and babble like other toddlers we know.


Monday, October 18, 2010

Fall News



The earliest we could schedule Mikan's stoma revision was for the end of next month. That time period is a big question mark for us since it is dangerously close to baby #2's arrival (I'm 31 weeks now), but we'll manage. At the beginning of November, Mikan's ENT will decide whether or not to add ear tubes and tonsil and adnoid removal to his surgery list.

Over the past few weeks Mikan has been making some great progress with his speech and eating. He is more vocal, trying to imitate more of our words. He's also getting a little more adventurous with his foods. Over the weekend he stole some of Grandma's sweet potato fries off her plate, and tonight he took a few bites of a pancake. He licked the syrup off at first, but then actually ate it. Like chewed and swallowed it. He still only takes dry foods consistently, but hopefully this is a sign of good things to come. Perhaps he's just more excited now that Notre Dame is finally on a winning streak.



Monday, October 11, 2010

How Mikan Stays Buff: The Daily Routine

Imagine "Eye of the Tiger" playing in the background.

He may not be able to walk yet, but watch out for his guns.

Monday, October 4, 2010

AFO Delay

When Mikan's PT saw the AFOs the orthotist sent us home with, she told us not to use them. She said that they gave him way too much of a stretch, and he probably wasn't sleeping well because he kept waking up in pain. We knew they were made incorrectly, but the orthotist made a small modification and told us to use them until the new ones came in. Apparently that small modification, meant to help Mikan, had been forcing his foot in a painfully unnatural position. We were glad his PT caught it, but obviously frustrated that the orthotist didn't. So we're still waiting... In the meantime, Mikan's walking is about the same. He's still very unstable without his walker.

Mikan has a new fascination with school. He saw a "Welcome to School" Signing Time video, and now cycles through all the signs while he's playing by himself. We are considering trialing a preschool when he turns three in March so perhaps this will help with the transition.

Last week we had Mikan's hearing tested because of the fluid he can't seem to get rid of. He is hearing in the "below normal" range, but that was expected because of the fluid. At the beginning of November we see his ENT, and ear tubes will most likely be scheduled at the same time as his stoma revision. His ST thinks the tubes will help his language development take off. We are still holding out that he may not need his tonsils and adnoids removed, but we'll see what the ENT advises.

How about them Irish? Mikan wore his Notre Dame sweat outfit without embarassment on Sunday for the first time in awhile.