Friday, March 19, 2010

More Equipment

Mikan got fitted for his SMOs this week. The orthopedic specialist said that Mikan would be able to learn how to walk without the SMOs, but he would be making compensations for his lack of ligament strength which would later lead to awkward running, clumsiness, and possible lack of coordination. Mikan has what some might call "flat feet." He said the difference between a kid with SMOs who needs them and one without is the difference between the kid running at the head of the pack at recess and the one straggling behind, then finally sitting with a book in the corner because it's too difficult. We love Mikan no matter which kid he is, but we also want to give him every opportunity to be successful. We should have the SMOs within a few weeks. The orthopedist also noted that Mikan crosses his second and third toe when he walks. He may have to get fitted for a special strap to correct this as well. Just load on the extra equipment...

This week during trach care I met some resistance while I was changing Mikan's trach. I applied a small amount of extra force and the tube went in smoothly, but I definitely felt like I had to "get past" something. Mikan's scope is in a week and a half, so I guess we'll find out for sure what is going on then. I hope this doesn't mean he has another obstruction. He is still tolerating his trach cap during the day, but anything is possible.

Here are a few videos from this week. Mikan is exploring all parts of our house lately.

Mikan loves doing the "dancing" sign whenever music is playing.
Mikan and Dad karaoke part 2.


the three wise menn said...

I was blog surfing and found your blog. Your son is very handsome. :) We have an 18 month old girly with glasses and whom also just this week got fitted for orthotics. Our story is much different, but I like reading about other people. Will be praying for your family!


If you want to check us out our blog is

Jennifer said...

LOVE the videos!!!

Biggest FAN (favorite aunt Nikole said...

I asked, "what is he doing to that kid?", (in the second video) Maggie responded, "I don't know, I guess teaching him the John ways."
Mikan will do the family dance parties Mikan's way. I can't wait to see it.