Sunday, May 17, 2009
Mikan showing off his ball-handling skills with Poppi this weekend.
Mikan's surgery was moved from July 31st to June 29th. This is good news; decisions will be made sooner, rather than later. After talking with several other parents, doctors, and nurses, we've decided to explore reconstructive options at either Chicago or Cincinnati if we get bad news in June.
In the meantime, Mikan's status has remained the same. He still has a horrible gagging/wretching fit 2-3 times a day. The Prevacid hasn't done anything to stop it. I'm not really sure if it was supposed to prevent this or not. I guess we won't know for sure if it's working until he has another scope.
However, we are very close to a 24 hr vent-free period! The last three nights Mikan has slept with no peep. He is only using his pressure support of 10. His respiratory status hasn't changed, although at night I've noticed his sats drop sometimes to 88-89 and then pop right back up again to the 90s when he's in a deep sleep. This is atypical for him; however, I'm not too concerned. I think a lot of babies do that...right?
We are supposed to call the pulmonologist tomorrow and give him a report on the weekend. When Mikan is ready to be off the vent, he will order an oximeter recording device that will track his vital signs overnight so he can review them later.
Posted by John and Jenna Gensic at 3:56 PM