Thursday, May 28, 2009
John and I are pretty exhausted. It is our final week of work for the summer. The last day for students is tomorrow. John begins teaching summer school Biology next week though till the end of June. No rest for the weary. Mikan has also gotten into this horrible habit of waking between 4:30 and 5:30 in the morning, ready to play, no matter what time he goes to bed. I also have to suction him pretty frequently at night when he is off the vent because his secretions (no matter how small) rattle loudly in his humidity filter and keep everyone, including him awake (the vent circuit would hide this noise). Now going to bed at 9 (which was 13 minutes ago) is essential for my sanity.
Mikan has remained off the vent for 12 days now. His pulmonologist called today and ordered another blood gas in one week. My gut tells me that we are ditching the vent for good. He is doing such a great job breathing without it. Please pray that we don't have any major setbacks before/after surgery in June.
Mikan is getting stronger each day. He now likes to rock and scoot his legs a little while on hands and knees, but he still keeps his hands still.
I hit Mikan in the face with his fisher price basketball today. I was horrified, but he was unphased, so I think that means he's ready for face-to-face combat with JT.
Posted by John and Jenna Gensic at 8:59 PM