Sunday, March 29, 2009
We are working on sustaining a crawling position. Since his g-tube hurts too much to be on his belly, this will hopefully help him get stronger.
Last week we received an official report from the Indiana State Department of Health. The cover letter said that after a thorough investigation of our previous home care agency, the department confirmed the validity of our complaints and said the agency was in violation of state law. The packet went on to cite several other violations of the agency that were discovered as a result of the investigation. If nothing else, hopefully the agency will be more cautious with client care in the future.
On to the section of the section of the post where I rant about Mikan's g-tube for awhile... We understand that it will be a chronic issue...I just need something to deal with the CHRONIC PAIN! It causes him so much irritation. He even compensates for the pain by pushing off our stomachs with his legs when we lift him up so it doesn't rub against anything. His g-tube doctor said that whoever we saw would recommend something different, so it was up to us to decide what we wanted to try. Apparently you can only order silver nitrate sticks in boxes of 100 and this doc. said that he was unsure insurance would cover an order for that many. Has anyone else heard of getting smaller quantities that insurance does cover? But this doc. thinks we should only use it if the tissue is out of control (the opposite of what the Riley surgeon said). Anyway, I am at a loss of what to do because of the pain it causes him. When he has surgery in April, I am going to try to talk one of the docs in the operating room into giving him another "aggressive" silver nitrate dose. If nothing else, perhaps he'll be pain-free for a few weeks.
This is Mikan playing with his "play ballard." Yes, he has a "play ballard." We had to give him a "play ballard" of a different catheder size because he bit through his last one. Those are too expensive to be changing every day!
Mikan is cheering for Louisville today.
Posted by John and Jenna Gensic at 1:41 PM