Monday, February 2, 2009

Super Bowl Baby

Mikan wore his 3-D glasses to maximize his Super Bowl Commercial viewing experience.



We have now scheduled an appointment for Mikan near the end of February to see a pediatric surgeon at Riley who specializes in g-tubes. His g-tube still leaks, he is maintaining his granulation tissue, and he remains in a lot of pain. To make matters worse, one of his home care nurses noticed a slight hernia coming from the scar from his g-tube. Some babies apparently have to have their g-tubes redone if the muscles don't heal properly. Oh, and by the way, his current granuloma around his trach is growing, and it looks like another one is forming as well (a scar-like one, not one that looks like it could be taken care of with a little silver nitrate). It looks like another surgery is imminent, or another three-four surgeries at once.

2 comments:

Michelle and Sean said...

Hey thanks for the advice! I will definitely get a pocket calendar.

Its so frustrating when you know how much pain your baby is in and not being able to fix it. I hope that you will get some answers soon. His napping pics are way cute and that is what Maggie does too, with the blanket. I also wonder if I should be trying to break that habit. Anyway good luck if he goes back for surgery. And with all of the g-tube stuff. Our prayers are with Mikan and all of you.

Angela Saoud said...

Dearest Gensics,

Just wanted to let you know I'm thinking about all of you lots and lots! I'm down for a visit anytime you're up for company!

Love and hugs,
Ang