Saturday, December 20, 2008
Mikan appears to be healthy. His secretions have reduced again. We're happy that despite all of his mini-flare ups, he has not needed to be medicated. Because he was doing well again this week, his pediatrician weaned his pressures more. His pressures are now 4 with a peep of 6. He is fast approaching not only the lowest ventilator support, but the lowest CPAP support as well. Next week his doctor said she wanted him to do some trials on CPAP. We don't know how long he will need the CPAP, but his support will remain low as long as he can tolerate it. His 02 requirement remains anything from from room air to 1/4 liter depending on the day.
Mikan's feedings continue to decline. Lately we haven't been able to get him to take anything by mouth. We are inclined to skip the bottle feedings entirely and just work on the spoon since he will most likely never need to take the bottle well.
But he's growing! He smiles more everyday and tries so hard to roll over!
Posted by John and Jenna Gensic at 4:35 PM