Wednesday, December 24, 2008
Mikan's pediatrician called yesterday to let us know that she wanted us to try him off of all of his machines for 1/2 hour trials during the day. She said she wanted to completely skip the CPAP step because he's been doing so well. He's already on low CPAP pressures anyway if we were to make that switch from the ventilator. In order to do these trials, we need new equipment (an oxygen mask that would attach to his trach and a humidity filter as well. We've ordered these from Memorial and when they arrive we can begin the trials. I'm not sure how well he'll tolerate the switch. We have permission to try a couple times a day for 1/2 hour as long as he can keep up his sats. If he does well, we can extend it to one hour a day. We hope he does well so we can take him around to the different rooms of the house and get him some scenery changes!
Posted by John and Jenna Gensic at 7:21 PM