Sunday, October 26, 2008

200th post

Mikan has been maintaining status quo. Last week he finally got his Synagis and flu shot. He has been eating slightly better, but only when mom feeds him. After four days without pooping, the pediatrician ordered a laxative. We gave it once and based on the results, I don't think we will have to ever give it again.

Mikan is is going to see another speech therapist and nutritionist through First Steps soon. The therapist has begun helping us with rice cereal feedings for Mikan. He is actually doing pretty well so far.

We are hoping to get him a Passi Muir valve for his trach. This would allow him to pass some air through his voice box, allowing him to make sounds. We can tell he is trying to coo, right now he is in a stage where he wants to put everything in his mouth.

The McCoys visited Saturday and we took Mikan out for a walk. The weather is turning and it looks like we will be cooped up in the house for awhile soon.

If all goes according to plan, Mikan will be completely off steroids in 2 weeks. Then we are supposed to call his pediatrician to discuss weaning his vent rate over the phone. The goal is to keep Mikan on CPAP till Spring and hopefully take him off once RSV season ends. Then his airway will be reexamined.

Aunt Annette taped noises of cousin JT for Mikan to listen to. He likes to listen to them during playtime.

1 comment:

Anonymous said...

Looks like he's growing nicely into those cheeks!