Saturday, September 20, 2008

LIfe at Home

Mikan has been doing pretty well at home. His feedings are still sub-par. He barely eats anything in the morning; however, in the evenings he's beginning to take 25-45 ccs. This is an improvement from anything he was taking at the hospital. Last night he slept 12 hours (9-9). Perhaps he's going through a growth spurt.

Next week is full of doctor's appointments: His regular pediatrician who will probably wean his steroids more, some therapy assessments at the newborn follow-up clinic at the hospital, the surgeon who performed his G-tube surgery (His stoma has been leaking regularly and he has developed a large amount of granulation tissue), and 1st steps is coming.

We haven't been needing to turn Mikan's 02 up during the day at all, but with his growth comes new complications. While laying in bed the other night he ripped off his circuit from his trach. He's getting extra grabby which makes dealing with his ventilator that much more difficult. Some of the pictures show this well.

1 comment:

The Lapp Family said...

Mikan is such a beautiful/handsome little boy. Keeping all of you, Jenna, John and Mikan in my prayers. Mikan is showing signs of being a true boy with grabbing tubes and all. God's Blessings to all of you,
Juli Lapp n' family