Friday, August 8, 2008

Same Old Same Old






No nursing again today. Big surprise. Everyone we talk to on the phone at the agency reminds us that with home nursing, this is a pattern, and they can't force nurses to work hours, regardless of whether our insurance doesn't roll over nursing days. We are hoping to get some sleep tonight with a nurse, but this 30 day period is flying by fast and we are worried we will be left in the dust with no nurses even if our insurance does grant us an extension.

Mikan's doctor gave us permission to lower his steroid dose today to .3mg. He hasn't seemed to notice the difference yet today; however, his feedings are still poor. It's looking like a temporary G-tube is in our future.

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