Saturday, August 16, 2008

Another Weekend Here

After talking with a seemingly endless amount of doctors over the last few days, it was decided that Mikan will get 3 surgeries in one on Monday (or whenever all the surgeons can organize their schedules). During a suck-swallow study and Upper GI study, doctors noticed some signs of reflux in Mikan and a high risk of aspiration. Apparently he doesn't have a strong swallow unless rice cereal is added to his breast milk. We discovered this after barium was added to his milk and he swallowed in front of an x-ray machine. The milk isn't going directly to his lungs, but it is close enough that he has a high risk of aspiration. In addition, he does have a reflux problem, therefore, his pediatrician is recommending a Nissen operation at the same time that he gets his G-tube (The top of the stomach is wrapped around the bottom of the esophagus to prevent food from coming back up).

Unrelated to his feeding issues, Mikan's granuloma in his stoma has increased in size, so he is going to get the extra tissue removed to make sure his airway remains open and easy to access. So Mikan's 5th, 6th, and 7th surgeries (all minor) will hopefully take place at the same time.

In the meantime, Mikan is looking good, staying active, and keeping the nurses on their toes. His poop looked like pale yellow spray paint today and all of the nurses were pretty confused. They said they would "watch it." There seems to be a lot of "watching" things here.

On a side note, on Friday morning, a nurse from our home health agency showed up at our house. Not the first communication problem we've experience with them.


Life in the Bend said...

Goodness gracious you two are being put through the wringer. How are you doing? I'm glad they're discovering what they need to do to keep Mikan healthy and I'll keep you all in my thoughts and prayers tomorrow.

Aunt Deb said...

He sure is a busy guy! Reflux is what caused me to do CPR on the side of the freeway on the preemie I cared for. Thank goodness I had her in the front seat or I wouldn't have noticed that she had stopped breathing. We landed in the hospital and had the same study done. She had reflux too and I had to thicken formula with cereal. Good luck tomorrow.