Sunday, June 22, 2008

Last Huge _______ Day

Mikan is currently in about 40% oxygen getting 15 breathes per minute at a pressure of 50 cm of water. We are excited for the hernia surgery tomorrow. We are hoping for a quick recovery and the swelling to decrease once the hernia is all taken care of. We are thankful Mikan is not infected because there was a scare last week that would have postponed surgery.

While we are excited to be going home relatively soon, we wish our move would be accompanied by Mikan's lungs showing progress. However, this is not currently the case. Mikan had initial success during the transition to the home vent, but this weekend he had a couple of episodes (breathing quickly and shallow with a heart rate over 200) that required his support to go up.

We think these episodes have one of two causes (or both at the same time):
1.) Time from last steroid dose. His episodes usually happen mid morning. He gets his daily steroid dose at 8:30 am. Therefore 9-11 am is when we are waiting for the steroids make their impact.
2.) Gasiness. He drinks breast milk that is fortified with formula that makes sure he gets 30 calories per ounce. This is necessary to prevent fluid retention in the lungs, but he gets real angry and agitated with the passing of gas and bowel movements.

He has been making progress in his feeding. Today he nursed from 5:30 to 6:30pm and did not receive any supplemental milk (this is an important step to taking out the feeding tube). Ask Jenna just how difficult it is to force a feeding tube down Mikan's esophagus.

1 comment:

mag7fan1 said...

Hi Jenna & John,
I found out from Sue Weaver last week about your situation with Mikan. I just wanted to let you know that all three of you will be in my thoughts and prayers.